CourtneyThornburgMDMS

Pediatric Hematology & Oncology • Bethesda, MD

Pediatric Coagulation Disorder Hematology

Chief Medical Research Officer, DBDR, NHLBI, NIH

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Office
Two Rockledge Center, Suite 9030
6701 Rockledge Dr. MSC 7950
Bethesda, MD 20892

Education & Training

University of MichiganMS, 2003 - 2005
University of MichiganFellowship, Pediatric Hematology/Oncology, 2001 - 2004
Duke University HospitalResidency, Pediatrics, 1998 - 2001
Duke University School of MedicineClass of 1998

Certifications & Licensure

CA State Medical License 2013 - 2026
NC State Medical License 1998 - 2016
MI State Medical License 2001 - 2008
American Board of Pediatrics Pediatrics
American Board of Pediatrics Pediatric Hematology-Oncology

Awards, Honors, & Recognition

Regional Top Doctor Castle Connolly, 2014
Fellow (FAAP) American Academy of Pediatrics

Clinical Trials

Hydroxyurea to Prevent Organ Damage in Children With Sickle Cell Anemia Start of enrollment: 2000 Aug 01
Completed
Phase 3
Priapism in Boys and Men With Sickle Cell Disease - Demographics, Characteristics and Prevalence Start of enrollment: 2005 Aug 01
Completed
Hydroxyurea in Young Children With Sickle Cell Anemia Start of enrollment: 2002 Apr 01
Completed
Not Applicable
Adherence to Hydroxyurea in Children With Sickle Cell Anemia Start of enrollment: 2008 Apr 01
Completed
Not Applicable
Evaluation of the Duration of Therapy for Thrombosis in Children Start of enrollment: 2008 Mar 01
Completed
Phase 3
Pharmacokinetics (PK) of Liquid Hydroxyurea in Pediatric Patients With Sickle Cell Anemia Start of enrollment: 2011 Dec 01
Completed
Phase 1
ATHN 8: Previously Untreated Patients (PUPs) Matter Study Start of enrollment: 2018 Oct 03
Completed
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Publications & Presentations

PubMed

A novel gene editing lexicon strategy for the haemophilia community: Research plan for development and preliminary results.
Cedric Hermans, Leonard A Valentino, Courtney D Thornburg, Carmen Unzu, Mark A Kay
Haemophilia. 2024-10-22
1 citations
Development of the World Federation of Hemophilia Shared Decision-Making Tool.
Donna Coffin, Mark W Skinner, Courtney D Thornburg, Brendan K Hayes, Thomas Sannié
Haemophilia. 2024-10-05
Evaluation, analysis, and reporting of medication adherence for clinical trials of anticoagulants in children: guidance from the ISTH SSC Subcommittee on Pediatric and...
Meghan E McGrady, Vera Ignjatovic, Sophie Jones, Aisha Bruce, Neil A Goldenberg
Journal of Thrombosis and Haemostasis. 2024-07-01

Abstracts/Posters

Electronic Health Record Tools to Promote Transition Readiness and Knowledge for Adolescents and Young Adults with Hemophilia
Courtney D. Thornburg, 61st Annual American Society of Hematology Meeting, Orlando, FL, 12/9/2019
Characterizing the Use of Direct Oral Anticoagulants in Children Using the American Thrombosis and Hemostasis Network Dataset (ATHNdataset)
Courtney D. Thornburg, 61st Annual American Society of Hematology Meeting, Orlando, FL, 12/7/2019

Press Mentions

Roctavian, Gene Therapy for Severe Hem a, Safely Raises FVIII LevelsMarch 21st, 2022
Gene Therapy Impresses in Severe Hemophilia AMarch 16th, 2022
Clinical Challenge: From Pediatric to Adult Hemophilia CareDecember 17th, 2019
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Professional Memberships

American Society of Hematology - ASH
Member